Health for Lindsey White

Seven years ago, on March 24, 2016 I experienced my seventh motor vehicle accident. My life and health have never been the same and I’m now unable to safely play any and all instruments. I worked beyond my capacity in effort to gain health and struggled with a perpetually re-injured, twisted spine as a result of accident-related injuries. Only recently was I given all the medical information I need to actually achieve this goal… but now all of my resources have been exhausted and I am at risk of losing far more than I already have.

I’ve made great efforts to make music more accessible to others for a long time and now it has become inaccessible to me; I am asking for help that is desperately needed. I spent around $40K on my health over the last few years and have had outstanding appeals for 4 issues with MPI (Manitoba Public Insurance), with the oldest beginning more than 4 years ago and no trial date on the horizon. On top of dealing with a broken system, I was surveilled by their investigator, accused of not being who I say I am, discriminated against and cut off from support I am entitled to; before being diagnosed with a plethora of medical conditions that explain everything and which MPI has ignored. I have filed a Human Rights Complaint, but this situation may legally be repeated again any time. I am genuinely afraid for myself and my community as we are all currently at risk of further discrimination. So, with the support of my friends and community, I initiated a fundraising and petition campaign to both support my health and do what I can to ensure this horrifying situation is not repeated here in the Province of Manitoba ever again.

All contributors to my Gofundme campaign received links to download 31 instrumental piano tracks from my last, double-album, “July 2020” as well as a temporary secret link to preview demos toward the next album I hope to release, “Thrive”.

Coney Photo

 

 

 

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One of my medical specialists wrote the following:

subluxations etc.

And they are correct. Accident, illness and injury ARE common catalysts for onset of HEDS symptoms. In the documentary “Bend or Break“, Mitch Martow discusses how H1N1 was the catalyst for his symptoms. For many women, it is the trauma of childbirth (or other trauma). For many recently, it has been COVID-19 and for me… it was seven accidents. 

Then MPI followed and video recorded me (because “I don’t look sick”) and my mental health has never been the same. Here’s a social media post about grocery store surveillance:

 

 
 
 
 
 
View this post on Instagram
 
 
 
 
 
 
 
 
 
 
 

 

A post shared by Lindsey White (@lindseywhiteofficial)

Click HERE to sign the petition to change Manitoba Legislation and ensure vulnerable individuals are protected:

The investigator who watched me didn’t provide Child/Adult abuse registry checks or Criminal Record checks to the locations where vulnerable community were surveilled. I told the Executive Director of the Manitoba Human Rights Commission that I can’t live with myself, knowing that this can happen again any time. To me, or to anyone I know. So I have approached my MLA to bring forward new Legislation and ask for your support in initiating very reasonable protections for vulnerable individuals… and for myself. It would be nice to stand on my front lawn without paranoia again.

Please visit the following links to learn more about Ehlers Danlos Syndrome:

What is EDS? (From the Ehlers Danlos Society’s International website.)          

What is EDS? (From the ILC Foundation in Canada)                     

More EDS Links

EDS on CNN                                                                                                     

Healthcare Presentations (from the ILC Foundation)

And here is a surveillance-music-video I made after this happened, telling my story along with a song called “Everything Breaks”. Please feel free to share it, along with any other links including: lindseywhite.com/health

H2

Feel free to share this graphic (or others) on social media!

Here is a photo of the first time I broke out in hives, after finding out there were 11 DVDs of surveillance footage taken covertly of me and my community. I haven’t felt completely safe since.

Hives 2019.20

And here is a song called “Brick Walls” (recorded when I was still able to safely play piano without further twisting up my spine)… which was inspired by the difficult journey of learning to trust and rely on my Community. Thank you!

14 GoFund Me, 5 “other” + 3 providers

Watch the May 5 “Songs, Stories & Poetry” online livestream here: